ABSTRACT
OBJECTIVE: To investigate the level of quality of life, life satisfaction, depression and demands of parents with children in special school. METHOD: Data were collected through a questionnaire answered by 152 parents whose children were enrolled in four special schools in Goyang City. The quality of life (QOL), life domain satisfaction measure (LDSM), Beck depression inventory (BDI) and the demand for rehabilitation and welfare service were obtained. RESULTS: The average score of QOL was less than 50 and the mental health component in particular was the lowest of all. The average score of LDSM was 3.9+/-0.9, and most notably the score regarding economic status resulted to be the lowest. The average score of BDI was 13.4. The general health screening and medical service related needs of the parents with disabled children were most significant, including the need for the expansion of welfare facilities for disabled people. CONCLUSION: In order to provide better rehabilitation service to disabled children, a policy which could decrease the physical and mental burden of parents with disabled children should be considered.
Subject(s)
Child , Humans , Depression , Disabled Children , Mass Screening , Mental Health , Parents , Quality of Life , Surveys and QuestionnairesABSTRACT
PURPOSE: Ultrafiltration (UF) failure is one of the most important causes of CAPD withdrawal accounting for up to 20% of CAPD catheter removal. Factors contributing to UF failure are; severe and multiple peritonitis, continuous exposure to nonphysiologic dialysis solution, and use of beta-blockers. We evaluated clinical features of patients with UF failure and assessed the risk factors for UF failure in CAPD patients. METHODS: CAPD data of our institution from Jan 1990 to Dec 2000 were analyzed and a subgroup of 191 patients whose CAPD catheters were removed were collected. Nineteen patients, whose CAPD catheters were removed due to UF failure, were selected from the subgroup as the case group. Seventy-six hospital controls without ultrafiltration failure matched for age, sex, and time of CAPD initiation who were currently maintained on CAPD were selected as the control group. Peritoneal equilibration test (PET) was done within 3 months of initiation of CAPD and at the diagnosis of UF failure, respectively. Peritoneal glucose load was estimated for the first two years. Incidence of peritonitis, accumulated days of peritoneal inflammation (APID), causative organisms of peritonitis, and history of beta-blocker use were evaluated. Peritoneal function was determined by daily net ultrafiltration and mass transfer area coefficient (MTAC) for creatinine. Serum albumin, normalized protein catabolic rate (nPCR) and Kt/Vurea were also evaluated. RESULTS: There was no difference between cases and controls in etiology of ESRD, peritonitis incidence, APID and causative organisms of peritonitis. The case group included more high transporters at the time of the diagnosis of UF failure. The patients with UF failure showed lower nPCR and higher CRP than controls. Serum albumin level was similar at start of CAPD, but decreased faster in UF failure group. Use of beta-blockers and decline in RRF were not different between the two groups. UF fail ure group had higher MTAC for creatinine and more peritoneal glucose load compared to control group. By logistic regression analysis, peritoneal glucose load and increment in glucose load were independent factors associated with UF failure. CONCLUSION: Peritoneal glucose load and increment of glucose load were found to be important risk factors for UF failure in our study. Therefore, various efforts to reduce peritoneal glucose load in CAPD patients are needed for prevention of UF failure.
Subject(s)
Humans , Case-Control Studies , Catheters , Creatinine , Diagnosis , Dialysis , Glucose , Incidence , Inflammation , Kidney Failure, Chronic , Logistic Models , Peritoneal Dialysis, Continuous Ambulatory , Peritonitis , Risk Factors , Serum Albumin , UltrafiltrationABSTRACT
No abstract available.